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Home > Uncategorized > Urgent Question for the Group

Urgent Question for the Group

Hello Everyone,

On Feb. 6 my blog is set to expire. I’m curious if the group feels this blog is truly helping others? If it is I’m happy to renew it again for another year.

Best Regards,

Matthew

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Categories: Uncategorized
  1. Maikel
    August 1, 2017 at 4:29 am

    Dear Matt, I have complaints in my hip / button for 6 months now. Have already had different therapies. Massage, dry needling, injections, etc. Injections help short-term.
    Now I want to do power exercises and stretch it but I think it’s getting worse. What is your experience?
    Greetz Maikel


    https://polldaddy.com/js/rating/rating.js

  2. Jennie
    March 28, 2017 at 8:51 pm

    Yes, please do! I just discovered this blog (now three weeks away from endoscopic piriformis release surgery) and two and a half years too late. I have been fighting for this diagnosis for two years and desperately seeking the names of physicians who actually dare to consider piriformis syndrome. I wish I had found this blog much earlier. At least I wouldn’t have felt so alone during the journey. Thank you!

  3. bigbiil
    March 3, 2017 at 1:55 pm

    Just got referred to Dr. Hal Martin. Has anyone had success with this surgeon

  4. November 15, 2016 at 7:12 pm

    Please continue with your blog it is helping a lot of patients that otherwise will go undiagnosed.In the East Coast there is no surgeons performing endoscopic surgery of the PS.Also acts like a referral to find good surgeons like Dr Martin

  5. November 15, 2016 at 7:07 pm

    Please keep the blog .I am trying to interest the Board of the journal Family Physician to actualize the subject of Piriformis Syndrome,my own experience 7 physicians before the diagnostic was made.No body thought of the PS neither they did the FAIR maneuver.As Sir Osler stated many yeas ago “What you do not know you will not diagnose”

  6. Kate Beckett
    November 14, 2016 at 3:25 pm

    This is a complicated subject and you might find the following link interesting:

  7. Mary Wolf
    November 10, 2016 at 10:10 am

    Hi, I had hip arthroplasty to remove bone spurs and correct a torn labrum on my right hip in February of this year. Prior to the surgery I was very fit and flexible but feared my increasing level of hip pain/discomfort would reduce my level of activity. At 53, I was not ready to be a couch potato! Long story short, the surgery did not work, my osteoarthritis returned with fury and by August of this year, the doctor recommended a total hip replacement. I had the THR on October 19 and seemed to healing well. At week 2, I shifted position in bed and experienced pain so excruciating I thought I’d dislocated my new hip. Turned out to be a butt cramp so severe I nearly vomited. After icing all day, it seemed to improve but seized up again that evening. A dose of pain meds allowed me to finally sleep but I was unable to sit on the toilet the next day and passed out twice in the bathroom. Spoke with my surgeon who said cramping was completely normal after a THR, but was hesitant to prescribe muscle relaxers until I described the severity, fainting, etc. After a week of continual icing and some mild massage via shiatsu pillow, plus a nightly muscle relaxer, I was able to raise my knee again and get around pretty well. Yesterday, at my medical followup appointment, I declared myself completely back to normal and left feeling like I was back on track and would soon be hiking and enjoying long walks in the woods. Last night in bed, another surprise spasm and I am back on ice packs today with what feels like a tight fist in my right butt cheek. Is this, as I’m told, a normal reaction to THR? At such an early stage in my recovery, are there additional measures I can take to prevent this from becoming a chronic problem? Stretching is out of the question at this point due to hip protocols, but I’d appreciate any advice. With two surgeries in one year, I’m wondering if scar tissue is an issue. Right now, I’m trying to remain positive and believe this will resolve on its own and never return. I’m no wimp but find this experience very disheartening. I’m in Oklahoma and see from the forum there is a Dr. Martin in Dallas who has experience with this sort of thing. Perhaps an appointment with him would be a good idea. Thank you for any information you can provide!

  8. June Payne
    September 19, 2016 at 4:42 pm

    Matt, thanks for posting this blog!!! All of us who feel we have Periformis disorder wil be eternally grateful. As I’m sure you remember, it is a horrible malady and one that has no simple solution. Most doctors don’t know much about it so they would prefer to insinuate that it might be a mental issue (wink wink). I bet if their butt hurt every time it makes contact with a seat of any type; they would slap the person who would dare to imply such!!!

  9. Donna Rowand
    June 21, 2016 at 8:47 pm

    I’m grateful it is still going, thank you! I’m new to this. The end of April I thought I pulled my right hamstring, and after a week it progressed to the point it hurt to sit, stand or lay down. I work at the front desk at a physical therapy office and once I Googled a bit I realized it had to be piriformis, linked to my body pump classes. I make sure I always do my nerve glides first, they are the most important. I recently caved and went to see a dr, he prescribed Lyrica for 30 days and a week of 2 steroids. Much better, so I sleep more, but I have more localized pain in the low butt area now. I disagree with x-ray results- severe low lumbar arthritis, and MRI results- moderate degenerative disc issues and bulging. No mention of piriformis at all. I know I have back issues, that’s 20 year old news and I’m careful. In fact, my back doesn’t hurt, just mid butt to knee on the right. I feel it could be both, perhaps, but not just my back. In the event I can’t reduce the pain, I am nervously considering surgical options, so I’m glad to hear of your success and am pleased I can learn more here.

    • Patti
      June 22, 2016 at 8:17 am

      Hi Donna, before you conclude your problem is piriformis, please have your hip capsule screened as well as your sacroiliac joint. Another possibility is Tarlov cysts. In order to screen for those one needs a detailed MRI of the sacrum. All of these structures present with the identical symptoms. If you’re considering surgery you want to be certain you’re tackling the right problem.

      • Maggie
        June 22, 2016 at 8:45 am

        Can SI joint syndrome alone cause sciatic symptoms similar to Piriformis syndrome? I do have pain in that joint, and have had for a long time. I have had debilitating sciatic pain for two years. My MRI was interpreted as just being “mild degenerative disc disease”. Meanwhile, a life long walker, I can only walk for 10-15 minutes without pain in my buttock, hip pain, and stabbing sciatica in lower leg right down to the top of my foot. After 39 minutes, the pain and stiffness stops me in my tracks. Physical therapy only makes it worse. I now have some amount of hip bursitis also, not cured by two steroid shots. I have been dismissed by my PCP basically with “maybe it will get better on its own” and that was two years ago. I am missing out on so many activities and travels and it makes me sad. I am only 63, and feel young except for this awful pain. No one in my health network seems to know anything about Piriformis, nor about SI joint syndrome for that matter. I’m a mystery to them, but unfortunately not a mystery anyone wants to solve! I’d like my life back, but don’t know where to turn.

      • Judy Laliberte
        June 22, 2016 at 9:27 pm

        Donna, I really feel for you. Your story sounds like mine, I’m going on 4 1/2 years and your PCP’s attitude sounds like mine. I have been with him for 10 years, like him and he is telling me he can;t help me, I live in VT and no one in NE is that familiar with this including all the big major Boston Hospitals, have been to them all. I’ve been diagnosed with PS via provocative EMG (FAIR) by a Dr. in NY. This was confirmed by an MRI I had with Dr. Filler from Neurography Institute. The problem is that none of the Drs I’ve seen here agree with the diagnosis and none of the piriformis shots including Botox have worked. I am currently seeing a chiro who is really trying to help me and does not think it is piriformis. My SI joint has been ruled out. I have a very small Tarlov Cyst which a specialist in Maryland said he’d never seen one so small cause problem. To be sure had a Nerve Block with no relief so that was ruled out. Hesitate to go to Texas or anywhere that far to hit dead end. So, I’m in pause mode right now.

        I hope you find some help and agree SI joint and Tarlov cyst should be checked out. I was very active too and had a great life, well still do but I miss my active life where I could do things. I’m not able to drive, Can’t sit straight for more 10 min. Anyway hope you are doing better than that and I hope you find some help soon

        judy.

      • Patti
        June 23, 2016 at 6:05 pm

        Judy: did you see Dr Borg-stein? Or consider regenerative injections? There’s a prolotherapy, platlet rich plasma, stem cell doctor in Philadelphia called Dr Shiple. I did 9 prolotherapy sessions and now 2 prp sessions. It’s the treatment which has helped me most, but pick your doctor carefully. I myself would not get roll therapy from a naturopath, but that’s just a personal preference. My prolo doctor is also a GP, ie medical doctor. I also have a .5 cm Tarlov cyst at S2.

      • Patti
        June 23, 2016 at 6:00 pm

        Maggie: some people say that si joint problems usually only cause symptoms to the knee but not usually down the leg to the foot. That said, si joint problems (hyper mobility) causes the piriformis to tighten often causing sciatica to the foot. We don’t have any doctors in Ontario, Canada who are familiar with these problems and we have no surgical options here. I’ve been getting prolotherapy injections to my sij and lumbar, and as well I’ve been getting injections directly into the piriformis – first cortisone (yuk) and now Botox. When the doctor inserts the needle into my piriformis it flops like a beached fish, which he tells me is because it is severely contracted. I also have some issues in my lumbar spine – annular tears and facet arthopathy which they say is just aging. I also have a small Tarlov cyst in my sacrum. All of this pathology makes diagnosis very difficult.

      • Judy Laliberte
        June 24, 2016 at 8:59 am

        Patti, wondering if the prolotherapy has helped. One of the Drs. I saw was going to do that but wouldn’t because I had no response to piriformis shot or Botox. Also Drs here don’t agree with Fillers report. There is a Radiology Group listed on this site that I am going to see if they can read Filler’s report and get yet another opinion. I am seeing a really good chiro here who does not think I have PS. I sent my records to Dr. Heinrich and talked with him on phone. He was so nice to take the time to talk with me. He was not interested in seeing me because I also have some facet arthopathy, a slight bulging disc and a Tarlov Cyst at S1L5 which makes my case messy. Drs here think all of those problems are insignificant and not causing problems as they are all small. Dr. Heinrich thought if I was diagnosed with PS by Provocative EMG/Dr. Fishman I probably have it. I would travel to TX but such conflicting opinions I don’t want to suffer the trip to dead end. I mention these things because some of them seem similar to yours. I hope the treatments you are getting are helping. This is such a frustrating situation for all of us who have these problems.

      • Patti
        June 24, 2016 at 12:03 pm

        Judy: yes prolotherapy is helping, but I have a clinical diagnosis of si joint dysfunction. For many of us we have multiple problems at the same time. I’m surprised that Dr Heindrick didn’t want to see you!

      • Kim
        June 24, 2016 at 1:17 pm

        I had a clinical diagnosis of SIJ dysfunction in 1994. Had a bilateral SIJ fusion, which was a disaster. IT was NEVER SIJ dysfunction. And they botched the surgery. Destroyed my life. Just a extra word of caution wrt SIJ dysfunction. I had researched it thoroughly, had corresponded with folks i the Netherlands who were the world’s experts, etc. In the end it was an arteriovenous malformation IN the sciatic nerves. Please be careful.

        Also, the VAST majority of US Neurologists do not “believe in” PS, despite the overwhelming amount of statistical data that it is real. They see the world as flat..

      • Donna
        June 22, 2016 at 10:43 am

        Thank you, I appreciate it! I’ll bring it up at my next appt. Definitely want to be sure, surgery is the very last option for me.

    • Lollie Winn
      June 23, 2016 at 2:26 pm

      I basically had the doctors tell me the same thing about my back after a hip arthroscopy done for labrum tear which did not get rid of my pain and unfortunately added to it. I went on over to check out the lower back and they said ” you need to get these injections” which I did and then all hell broke loose with sciatica (which I had not had a day in my life). I would think twice before getting those. My back did not respond well at all. I just wonder if I will ever be over the damage they did. Some people do have good results though–I just wasn’t one of them. This is when I decided to go see Dr. Fishman in New York and was tested and found to have the PS situation. Dr. Fishman said back and hip can parallel with piriformis syndrome(which some medical people refer to as “deep gluteal syndrome”) It’s so frustrating. Pelvis imbalances can lay low for decades and then something will trigger the body’s response—in my case it was my yoga teaching. Perhaps if I had not gotten so involved with yoga things would have stayed dormant. I was 49 when I started my journey with yoga and got fully involved. Up until that point, I never noticed pain anywhere and have had four children. I’m 63 now. My next move is to go see a pelvis doctor in Texas to get a second opinion because a neurosurgeon has told me I need a fusion between 1s-5l. I have had another doctor tell me he didn’t think my back looked “that” bad and he had seen far worse. Also I am going to a workshop in Denver in Aug. to learn the Gokhale Method. I am lucky I have gotten myself to a pain manageable place and can be active with my community and family but do take diclofenac almost everyday and of course have an array of exercises. At this point, I just want for a doctor to figure this out and either say “this is something that you are going to have to live with so just take your medicine” or if there is something that can click me back into place. I truly thank you Matt for this forum—obviously we cannot go around telling everyone about our medical history but on this forum we can do that and all benefit from each other’s story. My best to you. How wonderful that you were cured.

  10. Cathy
    June 19, 2016 at 5:41 pm

    Where is Dr Henrich in Wisconsin

    • June 19, 2016 at 5:43 pm

      Milwaukee

      • Kay Borkowski
        June 19, 2016 at 6:22 pm

        Matt,
        I believe I sent you an Excel spread sheet several weeks ago which put together regarding references to surgery on this web site. Since I have had no reply my e-mail, I don’t know if you got it. Also, I have not seen it made available on your web site. If you would like it, please e-mail me at kaybork@yahoo.com.

        Kay

      • Patti
        June 22, 2016 at 8:19 am

        I would also like to have a copy of the spreadsheet. My email is Patricia.sanghwan@sympatico.ca. Thank you!

      • Judy Laliberte
        June 22, 2016 at 9:10 am

        I would also like to have a copy of the spreadsheet. My email is judylaliberte@comcast.net
        Thanks so much.

  11. Shelly Vickers
    June 3, 2016 at 6:36 pm

    Hello all! I’m new posting here. I found this site maybe 4 years ago. It was right around the time my pain management doctor started making me feel like I was crazy and that all my pain was in my head. He was sending me to every type of doctor under the rainbow here in San Antonio, TX. I’d have more tests done, and in each one I felt even crazier. I had terrible pain in my low center back, traveling to my left SI joint area, into my left buttocks, and down my left leg. The sciatic pain was 24/7. Somehow by the grace of God (not meant to offend non-believers) a neuro-surgeon finally did an MRI on my pelvis. The good news–I wasn’t crazy! My sciatic nerve grew through the middle of my Piriformis muscle. He believed I had something called Piriformis Syndrome. The bad news–he didn’t know of a single doctor that could help me. So this site was such a relief! Finally, others that could understand my pain, both physically and emotionally.

    My PM doc continued to give me meds. and shots that never worked. His only option for me was to have the spinalcord stimulator implanted into my back. I still wonder what kind of free trip he gets after having a few of those implanted. Anyway, I was in my 30s, had a toddler, and there was no way I was getting that implanted. I decided at that moment I was in the wrong hands. We parted ways after 5 years of sub-par care, and I was happy to randomly find a new PM doc that could actually get the steriod shots in the correct place. And he encouraged me to continue my fight in finding help.

    I found Dr. Hal Martin during the summer of 2014. He is part of Baylor University Medical Center in Dallas, Texas. He has done hundreds of Piriformis release procedures, so I felt he was my man. Right away he noticed problems with my walk. After a VERY thorough evaluation and 3 MRIs, he wanted to start with my hip. He performed a femoroplasty to fix an acetabular impingement, and clean up a labral tear. During the surgery he found that when my leg/hip opened past 90 degrees, the ball actually came out of the socket. I had a very successful rehabilitation, and the surgery actually took away the sciatic pain about 50% of the time. I thought I was home free, and I hugged Dr. Martin.

    But over the last few months the pain is starting to become quite bothersome again. I went back up to see him last month. He now wants to work on the Ischiofemoral impingement. Dr. Martin notes that I have this problem on both hips, and if I was a bit older he would recommend both hips to be replaced. He gave me 3 options: 1–fix the impingement arthroscopically and see if that relaxes the piriformis muscles, 2–go in for a piriformis release, or 3–do both at the same time, BUT he’d have to open me up. So I have some things to think about.

    Something I have figured out is this–most of us that have this problem probably have some type of HIP PROBLEM, and most of us are probably HYPERMOBILE. The thing I love most about Dr. Martin is that he was not overly excited to cut me open. I had to see him for almost a year before he would schedule my first surgery. Which at the time really annoyed me because I was travelling back and forth from San Antonio to Dallas, and it was costing me a LOT of money.

    Anyway, THANKS MATT for keeping this blog alive! And I hope we all find the help we are looking to receive. I will update in a few months after I decide which route to take.

    • June 3, 2016 at 6:43 pm

      I’m so happy for you Shelly. I wish you all the best.

      Matthew

      • Mike abruzzo
        June 14, 2016 at 6:55 pm

        Hi Shelly. I have been following Matts blog for a long time and a matter of fact his footsteps as well. I’ve been diagnosed w Piriformis syndrome 31/2 years ago. After all the stuff(Chiro/pt/ anti inflammatory/ etc) I felt I needed to step it up. I went to dr scheirling (sp) in Missouri as Matt had done previously. Wonderful man and chiropractor but that wasn’t my fix. So just 3 weeks ago I went to Dr Heinrich in Wisconsin. long story short. I had a T3 MRI done in Phoenix where I live which was sent to Dr Heinrich. Last week I returned to Wisconsin for an EGT w Dr Hardin (absolutely wonderful doctor and great bed side manner), then I went to Dr Aaseen for a guided bi lateral Piriformis injection, then from there to see Dr Heinrich. Everything Dr Heinrich wanted to rule out WAS ruled out leaving him w the conclusion that it is Piriformis Syndrome. My injection helped a little bit, but the pain is back 80+%. Time to call Adam and Dr Henrich to schedule the surgery. Matt if you could please email so we can exchange numbers I would like to discuss a few things w you before the knife. I know Wisconsin is not close to everyone, but the team I met w Dr Hardin, Dr Aassen, Dr Heinrich, and his PA Adam are what I believe to be the best at this. They all know each other from the past and all work synergetically together.

  12. N. Vosylius
    May 19, 2016 at 2:33 pm

    I am trying to find a doctor in Canada that performs this surgery. If not Canada, then can someone direct me to a US doctor?

    • Patti
      May 19, 2016 at 6:24 pm

      I’m in the same situation. I’m in Ottawa, Ontario. There are no surgeons here who will do piriformis release and further, provocative emgs are also not done in Ontario. The only thing I’ve been able to get are CT guided Botox injections into the piriformis and CT guided cortisone injections into the piriformis (not recommended).

      • N voss
        May 20, 2016 at 11:43 am

        The cortisone hasn’t worked for me. I am now looking into going to the US. How do you know no one will do this in Canada?

      • Patti
        May 20, 2016 at 3:55 pm

        Hi N voss: I can’t speak for all of Canada. No one in Ottawa, Ontario does. I’ve been on this group and a zillion Facebook groups for 5 years, come across a number of Canadians and I’ve never once heard of a Canadian who could find care here. Sad.

    • Emma
      May 20, 2016 at 5:54 pm

      i’m not in Canada, but if I was, I’d think about seeing this guy who is in Toronto. I found this video months ago and bookmarked it because I found it so intriguing:

      I also found this of interest:

      This is his website:

      http://www.trigenics.com/trigenics/index.html

      If you haven’t tried it, I did find relief from dry needling and acupuncture and cupping, although I just found out that my soft tissue problems and misaligned pelvis may be the result of the fact that I have NO cartilage in that hip and I’m bone on bone, so now having a hip; replacement done. Since my problems started out with the piriformis and expanded from there, I wonder if that caused the hip problem which then prevented the piriformis from ever relaxing. A vicious cycle, nonetheless.

      Good luck to our neighbors in the north and all who are suffering this debilitating problem.

  13. Mike abruzzo
    May 16, 2016 at 2:17 am

    Matt. Can you please call me tomorrow. I just got back from a visit at dr. Scheriling. Email me at mikeabruzzo@gmail.com. I need to move forward to Wisconsin and have questions. Thank you

  14. John temple
    May 15, 2016 at 10:51 pm

    Still doing well, no pain in hip or leg. Had follow up Dr appointment in Houston. Office staff amazed to see me walking upright. I just pray this issue never returns. I pray for everyone represented in this forum, I barely could deal with the pain I experienced for 6-8 months I feel for those of you that have dealt with this for years. I don’t know how you have done this. God Bless.

  15. May 14, 2016 at 11:14 pm

    Dr Hal David Martin in Dallas perform endoscopic surgery for the Piriformis Syndrome and other near the hip problems

    • Shelly Vickers
      June 3, 2016 at 5:38 pm

      I am also a patient of Dr. Martins. He did a femoroplasty last March (and cleaned up an acetabular tear and something else) on me, and I am set for my second surgery later this year. It’s another impingement. Can you tell me about the results of your piriformis surgery. I LOVE Dr. Martin.

  16. Kim
    May 14, 2016 at 7:18 pm

    Matt: I would like to share a different anomaly that may appear as PS. I have been disabled by this, bilaterally, for 31 years. I have used a wheelchair since 1986. I am a failed case – but mine turned out to be a rare anomaly I haven’t seen on your blog, and so I will share.

    At age 27 I literally overnight went from being an athlete, graduate student and happy, to disabled and in severe pain ever since with random discharging of nerve pain in both the buttocks. Onset was sudden and SEVERE.

    Remember, in 1986 there was no WWW; there wasn’t even PubMed over dumb terminals yet – research consisted of going to medical libraries. I had many misdiagnosis, including Ankylosing Spondylitis, Piriformis Syndrome, Sacroiliac Joint Dysfunction. The Mayo Clinic told my family that I was “dramatic” and that there was nothing wrong. I went down many, many paths. I even spoke to Janet Travell for over an hour on the phone after I sent her my case.

    10 years later !!! and all the injections and diagnostics ( and more) that you had later, I underwent bilateral Sacroiliac Joint Fusion ( misdiagnosis ). It was horrific; the surgeon put the screws in too deep in the Foramen, and thus screws were impinging my sciatic nerve, making things worse. This was not discovered for 5 years.

    Meanwhile I found Dr. Fishman’s paper on H-Reflex delay and went to see him. My electrical evidence was very convincing. After subsequent PT did not help, I found a surgeon willing to do exploratory surgery. Resection of the piriformis and neurolysis on the left side revealed a “Tortuous system” of arteriovenous malformations running through and wrapping around the sciatic nerve. Similar to a “persistent sciatic artery”, but instead of running adjacent to the nerve, or adhered to the nerve, this was entangled within the nerve. The surgeon had performed this other times and told me it was the worst he had seen. The pain did not resolve. Too late. The nerve had been crushed for 10 years. I never had the Right side done since the pain did not resolve at all. IT is a living torture.

    In retrospect, I believe onset was consistent with starting Birth Control Pills.. (onset was 2 weeks after starting). The anomaly was always there, but “blew up” from the pill. It was a ticking time bomb. I told every single doctor I saw that the only thing that changed was starting The Pill.

    My advice to anyone starting this journey – 1. DO THE PT for Piriformis Syndrome laid out by Dr. Fishman. 2. If the pain does not resolve, go see Dr. Fishman. He has encyclopedic knowledge of this part of the anatomy, all anomalies and variations. His diagnostic testing, to my disbelief, is still controversial in the US, but widely accepted overseas. And he is one of the kindest souls to walk this planet. He couldn’t “fix” me, but he helped me and I am forever in his debt. IT is humbling to share the planet with such a fine man.

    I played the hand I was dealt after all the surgeries, for 18 years and struggled with severe, intractable pain.- but 2 years ago became very ill, with many symptoms, including severe body wide neuropathic pain – perhaps CRPS, cause is suspicious neurotoxicity from Macrobid overexposure ( Nitrofurantoin). Now that I have written all this, I hesitate to share my story.. but here goes..
    -kim

    • Valentin
      May 15, 2016 at 11:47 am

      Kim, could you please provide more info regarding Dr. Fishman and his paper. I did a search and found too many doctors with the same name.

      • May 22, 2016 at 4:01 pm

        Loren Fishman, M.D. 1992 ” Electrophysiologic Evidence of Piriformis Syndrome” it is quite technical. I think it is widely available. I think Matt has described it elsewhere. It is measuring the Delay of the H-Reflex in a provocative ( FAIR) ( Flexed, adducted, internally rotated if i remember correctly).

        I also refer you to a paper describing others with my rare condition ( Pellegrini et. all, “Extra-pelvic compression of the sciatic nerve”.. roughly the same year.

    • LaMarr Winn
      May 15, 2016 at 5:23 pm

      Kim, thank you for sharing your story with us. You sound like you have a lot of poise and courage in dealing so very many years with pain. It is so perplexing how this condition manifest itself into other areas. (Or visa-versa) What comes first- the chicken or the egg sort of thing. I totally agree with you about Dr Loren Fishman. If only we had more like him. –a very special healer. I pray you have some improvement in months ahead. Lollie

      LaMarr Winn 662-820-1991 Sent from my iPhone

      >

    • May 22, 2016 at 4:04 pm

      Thanks, everyone.. I really do not have a lot of poise and courage. I am homebound now for nearly 2 years, and at this point, things are spinning out of control. I do not want to wake up in the morning. Living in this level of pain is inhuman. seriously. But I thought I should share my story, and since i am too lazy to create a site, and because I think Matt does a GREAT service here, I just added this in.. -kim

      • May 22, 2016 at 6:48 pm

        Thank you Kim

    • June Payne
      September 19, 2016 at 4:00 pm

      Bless you Kim. Being relatively new to Periformis disorder diagnosis, my heart breaks for your years of pain and the nightmare of never finding any level of relief. I will pray for you and for a miracle such as Matt seems to have been lucky enough to experience. I have suffered for years but thought it was related to spondylolethesis. After many injections that did not help I was sent to physical therapy. He immediately touched several areas on my pelvis and hips that yielded the probable diagnosis. Therapy was helpful but didn’t bring the level of relief I need. I retired from my full time job in 2014 and went from miserable frozen shoulder to this awful pain in my left butt cheek and rectal area. Pain Meds were of minimal help and make my head feel weird. Also I worked as a nurse practitioner in drug and alcohol addiction and refuse to take more than a minimal amount possible. Last week the pain management Doctor injected my Periformis muscle. I had about one hour of moderate relief but one week later has returned to greater than ever pain. May God have mercy on all of us that suffer from this. All I wanted to do in retirement was read some books and sit and do some art projects neither of which can I do with this horrid malady!!!

      • September 19, 2016 at 4:16 pm

        You need to have endoscopic relief of the piriformis compression,Dr Hal David Martin is one of the few with experience

  17. Emma
    April 27, 2016 at 8:39 am

    Matt, thank you for putting this blog together and for keeping it live. I’ve had this for three plus years and I’m finally getting relief after seeing two internists, an orthopedic doctor, three chiro’s, an acupuncturist, massage therapists, rehab people and now I’ve found a group that does myofascial release therapy using John Barnes protocol and also do dry needling. This last group is the one that’s helping relieve the pain. Dry needling is not the same as acupuncture, which didn’t do much in my case, and you have to have more than one session, but I quickly saw a reduction in pain a few days after my second session. If you don’t know about myofascial release ala John Barnes, you might want to look into that, and know that the directory on his site isn’t complete so you may have to search in your area to find someone.

    From home, rolling around on a lacrosse ball has helped. Youtube has a lot of videos on that, as I’m sure you all know. They also have some stretches called piriformis flossing, but I can’t do those because my range of motion is so bad.

    That’s something I haven’t seen anyone else post about. Has anyone else lost range of motion? And if so, have you regained it following whatever you did to resolve this?

    • Mariko
      April 27, 2016 at 10:08 am

      Emma, Oh yes, I sure have lost ROM but unfortunately I haven’t yet found a way to regain it. I have not had much luck with any of the treatments I’ve tried: piriformis steroid injection from an interventional pain clinic, electro acupuncture which only made it worse, myofascial release from a PT which was far too aggressive and only made it worse, and various other physical therapy exercises. None of this has helped. I’m still stumbling around in the dark so to speak with my internist admitting he doesn’t know about piriformis syndrome but seeming to be unwilling to refer me to someone who might. Maybe he doesn’t know who to refer me to. It seems to be a very puzzling problem. It certainly is a very difficult thing to live with. I look normal on the outside, but inside I am in a lot of pain and can’t walk for more than 10-15 minutes without intense pain kicking in. I’ve recently read about the Melt method of myofascial release which uses special soft foam rollers. Have you looked into that? You can Google it. I’m beginning to wonder if I really do have piriformis syndrome causing my sciatic pain, loss of mobility, and loss of range of motion. Sorry for complaining and sorry I can’t advise you, all I can say is “I feel your pain”. Good luck. Hope you get some appropriate exercises to help with your ROM.

      • dachshundlover7
        April 27, 2016 at 1:17 pm

        My doctor, before giving me the injection said: “Since you have had a lumbar fusion and a total right hip, you will always have this problem.

      • Emma
        April 27, 2016 at 5:36 pm

        Mariko, thank you for your reply. I also had some pretty rough massages they were calling myofascial release and I agree, it seemed to make it worse. The group I’m going to now do the John Barnes method, and so far it’s been quite gentle. In addition to having trigger points all over the place, my pelvis is rotated and out of alignment, so we’re working on a number of issues at this point.

        In the end, I may well need a hip replacement, but if I don’t get these other issues addressed, I’ll come out of that surgery still having problems, so I think it’s best to clear up as much as possible first and maybe I won’t even need the surgery. I can tell you when my piriformis is looser than usual, the hip pain is greatly reduced and sometimes gone completely during that period.

        I just discovered and bookmarked a whole slew of youtube videos on the MELT method, but having already used a roller with nubs, I haven’t tried anything yet because I think it may be the same concept. I do think using a lacrosse ball really gets in the area more than a roller can.

        A couple of lightbulb moments for me of late – one is that my muscles were clenched even when I was standing still, and that was all me doing it, so I’ve made a concerted effort to be as loose as I can be and that’s lessened the pain. The other is that I used to gingerly try to work out the knots and stopped as soon as it hurt, because I was afraid I was going to injure something. I’m more aggressive now and starting to see some gain, though you can overdo it.

        I just started reading two interesting books I’m hoping will help. One is called Somatics by Thomas Hanna and the other is called The MindBody Prescription by John Sarno. Read the reviews on Amazon you may find them worth taking a look at.

        Good luck – I hope you, and all of us, really, find a solution. SOON!!!

      • Lollie
        April 28, 2016 at 3:22 pm

        I’m 63 and have active lifestyle–yoga teacher in past, 4 children, and now 4 little. grandchildren. The past two years I have been on this adventure with pain due to labrum tear, mild to mod lower back things, and this PS. I highly rec the MELT method but book is hard to follow– need cd’s and/or workshop. Also I do plank pose and side plank on both sides everyday. have worked up from only being able to hold for 8 breaths due to pain to 25 breaths now in each pose.😊 You have to remember progress is incremental. Also I am realizing that I will never complain again when I have 3,4,5 pain level since experiencing that 8,9, 10! I used to think I wanted to be totally pain free and now realizing that is probably not realistic. PS seems in many cases connected to these other pelvis and back problems. Good luck to you. Oh yes I did the myofacial release therapy but my guy was to aggressive and it set me back. Dr Loren Fishman in New York was a
        lifeline for me. Thanks to this site I found out about him. ❤️

      • Patti
        April 28, 2016 at 4:48 pm

        Lollie, I’m 58 and have been suffering with piriformis syndrome for 5 years. I’ve often wondered about seeing Dr Fishman, but haven’t (I live in Canada). Does Dr Fishman ever refer people for piriformis release surgery? I totally agree with you about how ps is so linked to other pelvic and low back problems. I was also diagnosed with sacroiliac joint dysfunction. I’ve found that dry needling can help and currently I’m finding that piriformis Botox injections are helping too.

      • judy L
        May 4, 2016 at 6:10 am

        Hi Patti, I’m glad to hear you are getting some help from dry needling and botox. Neither helped me.

        Dr. Fishman diagnosed me with ps via the provocative EMG. His pt and yoga routine did not help me so he referred me to a surgeon at Mt Sinai Hospital in NYC. I had sent in my records including the MRN report from Dr. Filler previous to my appointment. He spent about 20 minutes with me and although he said good things about Dr. Fishman he was surprised Dr. Fishman had sent me to him. He told me he did not do PS surgery ANYMORE and wasn’t even sure I had it. Dr. Filler’s final summery was “consistent with ps and sciatic nerve entrapment” but he couldn’t read the actual MRN. He didn’t seem that influenced with Filler’s report.

        Dr. Fishman is a very nice man and genuinely wants to help. He is excellent about communicating with you, same day email returns and will even return phone calls often times same day. I liked him a lot. Everyone is different with different conditions within this condition. It is very complicated. I got no help from ps shots from different providers and no help from Botox. That’s why I hesitate to travel out of NE. I do not want yet another wild goose chase. I have been to all the best Boston hospitals and also John’s Hopkins.

        Good luck to you and I am glad you are finding some help.

      • Patti
        May 4, 2016 at 4:25 pm

        Thankyou Judy, I’m surprised at the surgeons response. Diagnosing and treating ps seems to be controversial among doctors for sure.

      • LaMarr Winn
        May 5, 2016 at 5:15 pm

        Patti, I wasn’t ignoring your question–the response from another member was so informative. I have not talked to Dr Fishman about surgery since the one session of Botox injections and various exercises and techniques seemed to calm down my pain. I did make an appointment with a surgeon in Dallas that does the surgery but he could not see me until August and it was in Jan. When I made appointment. I forget his name right this minute but I got it from this blog. The other Doctor is in Ohio(Dr Ellis- I think) but when I called his receptionist told me he won’t see patients over 60. I wish there was a way to see where the sciatic nerve was actually involve with the piriformis without having surgery. I’m planning on going back to see Dr Fishman in June and will ask him about surgery and let you know what he says. As long as I can keep pain level under 5, I will probably stay away from anymore surgery. I noticed you said Botox was helping you too. I am curious to know how your doctor did injection. Dr Fishman hooked me up to his machine and injected the piriformis in 4 different places. Is this how your doctor does it?

        LaMarr Winn 662-820-1991 Sent from my iPhone

        >

      • Patti
        May 6, 2016 at 2:08 pm

        LaMarr – I’ve had piriformis injections done in a GP prolotherapy doctors office under ultrasound guidance and I’ve had Botox injected into the piriformis at the hospital under CT guidance. I’ve found the CT guided injections done by an anesthesiologist to be more effective. Even though they help me, it’s not 100 percent and is only a temporary thing.

        Have you had an MRN?

      • Lollie
        May 6, 2016 at 10:19 pm

        Patti- I don’t believe I have had that one. Is that what you had? I had progressive EMG that Matt mentioned. I am by nature a positive and cheerful person, but sometimes I feel so overwhelmed and disallusioned with the way the medical community handles this affirmity. It just seems like the treatment and solution could be more forthcoming. I don’t get why it’s so complicated.

      • Patti
        May 7, 2016 at 8:17 pm

        Lollie – an mrn is magnetic resonance neurograpthy. Many people have the mrn imaging test done at the neurograpthy institute which has locations in a number of US cities. It’s done in a regular MRI machine but uses a different imaging protocol which can map the sciatic nerve to see where it is irritated or compressed. I had mine done at the neurograpthy institute in Buffalo. Some of the hospitals in the US also do the test. I live in Canada and it’s horrible trying to get a diagnosis or treatment here. There are no doctors in Canada who do piriformis release surgery. In the Us you have to identify the surgeons who do it and got see them. The majority of doctors won’t or don’t treat ps. So discouraging, but many people here have been brave, taken the plunge and travelled for the surgery. So it is possible.

      • Lollie
        May 8, 2016 at 3:15 pm

        Patti. Do you know if most of those surgeries turned out? I will have to research that test. I am interested to know. The only thing I don’t understand is if you can get that test and see where nerve irritated then why don’t more people get this solved.

      • Patti
        May 8, 2016 at 4:31 pm

        Lollie – I think that not a lot of doctors are even aware of the mrn test. An even fewer about ps release surgery because it’s considered a “rare” condition.

      • Lollie
        May 8, 2016 at 8:59 pm

        I think the only thing “rare” about PS is finding the right doctor that gets it and can help you. 😝 Must laugh to keep from crying as the saying goes. I am better off than many. At least Dr Fishman diagnosed ps and got those terrible spasms to stop. Keep in touch on your progress. I pray the great fire Canada is having is gotten under control.

      • Lollie
        April 28, 2016 at 3:33 pm

        Hi. Lollie again. I meant to share this too. Have learned the Alexander Method and it has helped so much anywhere I am. It is a technique that you can use all day long to help relax those clinched muscles we don’t even realized are clinched. You can skpe with great teachers. I had skyped classes with excellent teachers from Asheville NC and one from New York. I can give you their names if you would like.

  18. John Temple
    April 12, 2016 at 3:15 pm

    After writing on March 20, I went further down hill. I could no longer walk at all, not even 10′. Made another appointment with Neuro in Houston. I was in agony for the 2 hr trip to his office. Plain X-Ray in his office revealed no change after surgery. I tried to speak with him about the Periformis issue but he assured me my problem was in my back and not in my butt. However, He saw the pain I was in and had me admitted to the hospital. Another MRI was ordered. It indicated no change after surgery but showed a slight abnormality at L4-L5. Not significant. These test were on a Thursday afternoon, because the Neuro did surgeries on Friday. With the excruciating pain I was in, he scheduled exploratory surgery for Friday A.M. Thursday night while laying in the hospital bed, I rolled to my left to reach for water. I realized that my left hip did not hurt. I called for a nurse to help me to the restroom. I was able to not only stand, but walk to the restroom. The Dr was advised. Surgery cancelled. As fast as this had come it left just as fast. That Friday I was back walking hundreds of feet and went home. The Neuro thinks something slipped back in place, but the MRI showed nothing out of place???? Houston, is considered the Medical capital of the world. However I have been unable to find a Dr. That actually treats Periformis Syndrome. Methodist Hospital has a web page about the syndrome but offered no specific Dr. I have never hurt in my back, either before the surgery or after. I have always hurt in my left hip and leg. Has anyone else experienced the pain coming quickly and leaving quickly? I have been pain free, 0 pain for the last 2 weeks. Not even a hint of a problem. Thank God!

    • April 12, 2016 at 8:46 pm

      That is incredible news John!! I have the same L4,L5 problem with an extruded disc. I have had major difficulty getting my pain management person to give me and injection. I only get to go see them every two months and after fighting to see the right person there I am going to get one soon. What is frustrating is the PA was very aggravated that I even wanted one. He tried to talk me out of it by saying. “Do you know what that it?” “It won’t last but a week”. After telling him that I knew that is was both diagnostic and therapeutic he calmed down a bit. I really don’t feel and hope my problem is coming from my spine. No one really want to listen these days. I would like to mention the National Pain Report to you. It is very information and has daily blogs for chronic pain patient such as us.
      All the Best
      Tim

  19. LC
    April 10, 2016 at 5:06 pm

    Don’t give it up if I am not too late. I have just found it after much suffering. l am looking into surgery now.

  20. April 10, 2016 at 3:56 pm

    The Piriformis Syndrome blog has helped many individuals, please continue the blog. If economic help is needed I am sure many will contribute with donations.

  21. Valentin
    April 10, 2016 at 3:04 pm

    Matt, thank you for doing this, I have just come across this site, and it is great to find out that many other people are suffering like me, but there is hope out there.
    I’ve been having symptoms similar to yours for the last 15 years. My conditions were getting worst and worst year after year. Since May last year, I’m in constant unbearable pain in the right side – buttock, low back, and hip and numbness going down to the foot. I’ve seen many doctors, chiropractors, PTs, and acupuncturists. I’ve got numerous CT and MRI scans and injections with no result and tried many different medications. The latest test for me was a Standard EMG that was normal. As you stated, the right diagnosis is the key to successful treatment. So I will call the office of Dr. Heinrich first thing tomorrow and try to schedule an appointment. I leave in Minnesota, and Milwaukee is still on driving distance for me. I suppose that Dr. Heinrich recommended the Provocative EMG test for you. Did he recommend any other tests? In many of the comments here people talk about MR Neurography as another valuable diagnostic tool, did you have one done?

    • April 10, 2016 at 3:36 pm

      Hi Valentin. Dr. Scott Hardin did my Provocative EMG. I didn’t have an MRN.

  22. John Temple
    March 20, 2016 at 4:35 pm

    I have just came across this site. Thank you for doing this. At the age of 61 I. Have been active all my life until this. I have no real idea how or where this came from. One morning In Sept of 2013 It started with severe, severe left buttock pain with radiation down my left theigh. I could not walk for more than 10′ before having to lay on the floor. Went to the Dr. He ordered an MRI. It showed much to my disbelief that I had a ruptured disk and 2 bulging disk. I have never had a back injury and no back pain. At the age of 19 I worked at a furniture store while going to college and this guy taught me how to pick up everything. I have carried that knowledge with me. After the MRI I thought surgery. The Doc said let’s try a steroid injection. I walked out of the Dr’s office and was pain free for 2 years to the month. One morning in Sept of 2015 I got out of bed and “BAM” there it was again. 10′ and to the floor. Back to Dr. Another MRI. No change in back?? Scratch my head?? Another injection. Lasted 1 month. Another injection. Lasted 1 month. 3rd injection 1 month. End of that. I laid in bed and on floor, taking hydrocodone and muscle relaxers until I found one of the best Neurosurgeons in Houston. Surgery on 1-29-16. Repaired my herniated and bulging disk. That afternoon they got me up and I walked 290′ more than I had walked in almost 2 months. Hallelujah I was healed. Then on 3-13-16 BAM! Back again. I went back to Neuro. X-Ray revealed no change after surgery??? Injection in butt. Some help, not much. I did not know what to do next. I can’t say why the surgery helped?? I wondered why the pain, when MRI showed no change from 1st. My problem was and is in my hip. Your site and the problems you went through and the wasted treatments will allow me to skip those treatments and go to the last step. For that I am so grateful. At almost 62 I might not have a lot of years ahead of me but what I do have I don’t intend to spend on the damn floor.

    • March 20, 2016 at 5:23 pm

      John your story is just like mine. I had a total RIGHT hip in 2013 and an ALIF 360 spinal fusion (L5-S1) in 2014. I always had some pain in rt buttock but figured the surgery would get rid of it. It did disappear for about 4 months after my fusion but I was on valium then. My hip surgeon said “I did not cut that muscle” My neurosurgeon said you need PT. I just had 33 sessions of PT and although my legs are stronger and I can squat, I still cannot walk. My neurosurgeon is sending me for a CT on my lumbar because I do have an extruded disc at L4,L5. PT says that is the cause but I do not think so.
      This blog is a life changer for me. I am getting an injection next month in my piriformis muscle. I too searched for four years and NO ONE would listen to me, UNTIL I found this blog.
      Best of luck to you and keep me and others notified.
      The original post on this was great.
      One other thing. My physical therapist had me do adduction and abduction exercises on the machine. Two sessions (60 reps) on that thing put me back on a cane!!!
      I am standing by to hear how it goes.

    • Geneva Maloney
      April 25, 2016 at 8:32 pm

      My name is Geneva and I live in Bradenton Florida am looking for a doctor to help with my piriformis syndrome. Would like to find someplace pretty close to home if possible. The pain doctors so far, here will not take my case. I need help finding a doctor. I was suggested a Dr in Jacksonville, approx 5 to 6 hrs. and a long way up there. Miami is approx. 3 hrs. and I am without anyone to drive long distances for appointments.

      • April 25, 2016 at 9:15 pm

        Dr Ghazi from the Jacksonville Mayo Clinic is the physician you need

  23. Jay
    March 19, 2016 at 10:44 pm

    Please maintain this blog!!!

  24. Patti
    March 11, 2016 at 5:24 pm

    Please keep the blog Matt!

  25. March 11, 2016 at 2:17 pm

    I have been searching on my own for 4 years and just saw this. I actually had a total right hip replacement in 2013 and a L5-S1 ALIF 360 in 2014 (spinal fusion with hardware). I had this problem before those two surgeries. I simply cannot walk far because of right pm pain. In Fact, my 2016 physical therapy was doing me some good (massages) until I moved to the abduction/ adduction machine. I am in constant pain now after just after three times on that thing. The only muscle relaxer that ever worked for me was diazepam. They guard that drug now. I tried baclofen (evil stuff), and two other muscle that did not help. I am going to try and get an injection next month (April from my pain management folks). I feel there is no hope in my near future to get this resolved judging from the previous comments.

    • Patti
      March 11, 2016 at 5:23 pm

      I recommend that if you’re getting piriformis injections – cortisone or Botox, try to get them done CT guided, done in the hospital by a radiologist, rather than done under ultrasound in a pain doctors office. I’ve had both and found the CT guided way more effective.

      • March 11, 2016 at 8:49 pm

        Thanks Patti.

      • April 27, 2016 at 11:15 am

        Patti,
        I got my first piriformis injection done on April 26. I really can’t tell that any improvement. The doc said , “Anyone like you that has had a lumbar fusion and a total right hip replaced is going to have pains in the buttock. Looks like I need another fusion at the level above. It is either Fusion, Spinal stimulator or wheelchair in two years.

    • Margaret
      March 11, 2016 at 11:03 pm

      Lately I have read that these abductor/adductor machines are no longer recommended and can even be harmful. Apparently, they don’t mimic any natural movement in the body.
      It sounds as though they are not for you either. I wish you good luck with your pain relief.

  26. March 1, 2016 at 7:54 pm

    Need to be kept,It is of utmost help to many,many patients that will be lost without it

  27. Patti
    March 1, 2016 at 7:03 pm

    Please keep it going. We are all desperate for help and will help you if you need it.

  28. Lollie Winn
    February 25, 2016 at 2:12 pm

    on last post about flair ups. I have had flair ups from myofascial release therapy that was too aggressive. I have been using the MELT METHOD recently and feel like it’s helping everything. I do have lower back issues in addition to PS. Good luck.

  29. regina B
    February 22, 2016 at 11:53 am

    Matt,
    I just found your blog and I have been on a two year “hunt” to help my 20 year old son. I have learned more here than anywhere.

  30. melissa
    February 1, 2016 at 12:51 pm

    This is the only resource I have found that has pointed me in a direction of hope. All my primary care doctor did before was refer me for more physical therapy. After four rounds it wasn’t helping at all and I found this group. While I am not sure about the direction I’m going to take my treatment, this page has been very informative and has motivated me to explore other options. Please consider keeping this blog active.

  31. Jeff
    January 27, 2016 at 6:36 pm

    Matt. If nothing else it is a source of hope for sufferers. Please keep the blog going. I haven’t sat down for over 12 months and dont have a definitive diagnosis yet. However I will try the provocative EMG. The stretch used to perform the test has caused me 3 major flare ups that can last months. Can PS flare up from stretching?

  32. Iris
    January 22, 2016 at 4:54 pm

    I recently found your blog and it is the most helpful resource I have found so far. It is a comfort to hear from so many other people who are going through the same thing. Thank you for creating it and I hope you decide to keep it.

    -Iris

  33. Lollie
    January 12, 2016 at 10:13 am

    I also would’ve glad to make donation. Just let us know. I cannot thank you enough. This is 4 day out from my Botox injections from Dr Fishman. I actually cooked dinner last night which is something I haven’t done in over two months. It may not last but this tells me so much about my condition. I am not taking these pain free moments for granted .

  34. wendy
    January 12, 2016 at 8:28 am

    This blog has been an invaluable source for me in my search for the 10+ years of PS pain that I have. You amazingly kept going, and in essence have kept me (and I’m sure a lot of us) going when I was about to give up. I found you completely by accident by researching baclofen and piriformis syndrome. Reading your story was like the words were coming out of my mouth and the pieces finally fell into place. I’m grateful to you and I wouldn’t be where I am today without you and your blog. Please keep it up and if you need donations or anything whatsoever count me in.

  35. Bill
    January 11, 2016 at 12:57 am

    I just found your blog. I would like you to continue your blog. There is a lot of information, and I have been looking for help. Thank you

  36. Lollie Winn
    January 10, 2016 at 6:11 pm

    Please don’t stop! This blog has been extremely valuable to me and I’m sure so many more. I would never have know about Dr. Fishman. I have just returned from New York-(my second trip to see him ; i live in Mississippi) I got the Botox injections this time. What a wonderful doctor and person Dr. Fishman is. He tested me positive for piriformis syndrome last month. I had arthroscopy for hip year and half ago with Dr. Byrd in Nashville for labrum tear but never got the relief from surgery I thought I would. Dr. Byrd said my hip looked good from surgery and that he thought I had “compensatory” issues. I began to have spasms that I can only describe as being painful as childbirth but worse because they wouldn’t end until very strong meds took effect. It was always when I woke up in the morning–I got where I didn’t want to go to bed. My husband and I were at our whits end. My journey continued and I found myself on your blog. Thank you so much for sharing with us. I am not cured yet but feel like I am on my way. Dr. Fishman does see something going on in my S1 and wants me to do a caudal injection also. He seems to think that my back could have caused the piriformis problem and hip problem. This has all been going on for years to some degree or another. I am a very active 62 year old female–it all began about 12 years ago after I began teaching yoga.

  37. Celia
    January 8, 2016 at 11:03 pm

    I just discovered this blog…
    have had piriformis syndrome since 1986~~~
    Yes 30 YEARS!!!
    this has been the best resource I have found yet

  38. Lea
    January 8, 2016 at 9:31 pm

    Matt. Your blog gave me the knowledge and courage to have surgery after 4years of affliction. I am now cured. Let me know if you need contributions.

    • dachshundlover7
      March 11, 2016 at 8:56 pm

      Lea, that is how long I have had it. How was your rehab? My back surgeon sent me to rehab and the abduction-abduction made it much, much worse. I can hardly sit at all now and barely make it thru the day. The pain is so physically draining.

  39. judy L
    January 8, 2016 at 7:26 am

    Matt, your blog has been a total help to me. It has put me in touch with Drs. I wouldn’t have known about, shown me I’m not alone, educated me and kept me searching for help. I think you have helped many more people than you know and it has been a great service to people. I know we all appreciate this blog. I know I do and I thank for all the time and effort you have put into this.

  40. January 7, 2016 at 7:30 pm

    When I needed it, I found it VERY helpful. I have not been on the blog for some time due to other health issues. I did wish that I could have gone to the doctor that you went to, but I live in Texas. Thank you so very much for being so thorough. So glad that you went through the maze and was successful.

  41. Charles
    January 7, 2016 at 6:18 pm

    I just found this blog and reading the comments answered many of my questions. Please continue it.

  42. Margaret
    January 7, 2016 at 6:16 pm

    I too have only recently discovered your great blog. It is SO helpful, because this is a very under diagnosed syndrome and such a painful, limiting one. I am very grateful to you for all the information. I have had PS for about 2 1/2 awful years. My doctor doesn’t seem to get it. He just talks about core strengthening exercises, which only make me worse. Please keep your blog and thank you very much for it.

  43. January 7, 2016 at 5:45 pm

    Matt, you have a wonderful blog/website and indeed it has helped many people. As you know I’ve linked you to my blog/website and hope that you continue with your site. You are the best source I know for Piriformis Syndrome. Thanks! Sincerely Kim-AHE Health http://www.si-instability.com

  44. Noushaba
    January 7, 2016 at 3:23 pm

    It’s really helpful.

  45. January 7, 2016 at 3:11 pm

    Your blog is of utmost importance to the many patients suffering from PIRIFORMIS SYNDROME.This syndrome is most of the times undiagnosed decreasing the quality of life of those patients with undiagnosed symptoms.Please continue your work,I have a web page dedicated to the THORACIC OUTLET SYNDROME that have the same characteristics of the PIRIFORMIS SYNDROME,most of the times it is undiagnosed.I will be glad to place a link to your blog.

  46. January 7, 2016 at 2:50 pm

    I’m so happy that you feel well enough to stop the blog but I’ve only just discovered you. It appears as though you are about the only one out there willing to discuss your history with piriformis syndrome. I would be very sad to see you go. I know it might be difficult but I would love to see this blog continue for all of us out there who are still suffering. Thanks.

  47. Jim
    January 7, 2016 at 1:54 pm

    Matt, first off, this blog is a valuable resource for those dealing with this complex syndrome, so please do keep it going. Second, I’d be happy to send you a contribution toward the cost of renewal… let me know if you have a paypal, or where I can send a check (let us all know for that matter, I’m sure there are others who value this ‘meeting place’). Lastly, the blog is a bit tricky to read & navigate in the ‘discussion’ portion — so I’d suggest investigating the idea of converting it to more of a ‘forum’ format.

  48. January 7, 2016 at 1:34 pm

    Matt, you are one of the only sources for really good info on this painful problem.

  49. Brian
    January 7, 2016 at 12:23 pm

    Matt- This blog did help me a ton get through the process and surgery! I hope I have returned the favor here for others. One thought if you want it to be easier for people to post and communicate without you having to do as much or the cost is you could move it to a facebook group…. Just a thought but thanks for all your info!

  50. ROSLYN COHEN
    January 7, 2016 at 11:01 am

    Please keep posting.Roz Cohen ________________________________ > Date: Thu, 7 Jan 2016 13:24:13 +0000 > To: hotbuns3@msn.com >

  51. Georgetta
    January 7, 2016 at 10:58 am

    For me, I’ve just discovered it and so far, I’ve found out about other treatments. It’s also helpful to know that I’m not alone in my misery and that there have been some success stories. I hope you can continue it.

  52. January 7, 2016 at 10:57 am

    Please don’t stop. Surgery is Tuesday for my daughter. We have hope now.

  53. Carole Bilina
    January 7, 2016 at 10:55 am

    Matt, Don’t give it up. My Daughter Katie is having surgery this Tuesday with Dr. Heinrich after 5 years of suffering. Discovering and reading your blog has given her hope.

    • Sachin
      July 7, 2016 at 7:16 pm

      Hi Carole,
      How did the surgery go and how is your daughter now?

  54. January 7, 2016 at 10:08 am

    Please renew it, it is very helpful as PS is still something very unknown. I live in Switzerland and had to go to Belgium to have the surgery done, because there is nobody in Switzerland doing it. Unfortunately I’m not cured, I fear I have some kind of recurrency, and again nobody here can help me. The butt is a grey zone here.

  55. Zinggi
    January 7, 2016 at 10:03 am

    Please renew it, it sure is helpfull to hear about the experience of others, as PS is still something very unknown. I live in Switzerland, I went to Belgium to have the surgery, because there is no doctor here doing PS surgery. And now the docs look at me as coming from mars when I tell them I had piriformis tendon release. Unfortunately I’m not cured, my sciatic nerve gets still irritated from something in the butt, but again nobody can help me here.

  56. Bob
    January 7, 2016 at 9:43 am

    I think that it is a nice resource for people. It would be great to renew it but I understand if you do not feel the need.

  57. Lynn
    January 7, 2016 at 9:20 am

    Please continue!!! Very helpful.

    Thanks!

  58. Kay Borkowski
    January 7, 2016 at 8:55 am

    PLEASE RENEW! I’ve been doing research for a friend recently confirmed (by MRN) to have primary piriformis and your web site has been invaluable. I’m hoping to find a way to get and put Kathy Skees’ documentation that she used to get her surgery approved on the site for others to use.

  59. January 7, 2016 at 8:51 am

    If it had not been for this blog, my husband would probably still be suffering. I cannot tell you how helpful it has been in our journey, and continues to be a help to others as well. I appreciate your time and effort, and commitment in maintaining this blog. Can’t thank you enough!!

  60. Margaret
    January 7, 2016 at 8:47 am

    I would be sorry to see it go because it is such a difficult problem to deal with. Any advice from others is invaluable.

  61. Athena Fremstad
    January 7, 2016 at 8:45 am

    I think this blog has helped many people, including me. I would be sad to see it go. I have been following the progress of some of the people who have had surgery. It’s extremely helpful to me!

  62. January 7, 2016 at 8:29 am

    I read a lot of the local posts.

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