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Home > Support > You’re Not Alone

You’re Not Alone

For years I felt like I was alone in my search for a reason for the chronic pain and for an effective treatment. I was in a very bad place, for sure my lowest point in my 39 years of life, when I finally found an online support group with other Piriformis Syndrome sufferers.
It’s a private group moderated by a beautiful, compassionate, knowledgeable moderator with dozens of members alike.

You’re not alone, and the pain is not in your head. It is real, and there is hope of eliminating it or greatly reducing it. If you want to learn from dozens of other like you, or if you just want to vent to those who will open their hearts and ears to you any time of the day, as often as you need, I recommend joining this group.

Yahoo Piriformis Syndrome Group

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  1. Helene G.
    November 28, 2017 at 5:35 pm

    I had a nasty fall while in high school some 50+ years ago. I was bothered by pain in my left butt cheek and down the back of the left leg on and off all these years, but I coped with it. This summer, however, my pain became worse and chronic.

    An X-ray and MRI showed nothing. I was prescribed PT, and the therapist said that I had inflammation (or spasms) of my piriformis muscle. I am now doing stretching exercises twice a day as well as PT, but after a few weeks, I’ve seen no relief.

    I can walk very well and participate in other daily activities with “cope-able” pain, but driving is a killer — even after just five minutes in the car. The pain down the back of my thigh is hardly bearable. I have to limit driving to 15 minutes. I am assuming that I have piriformis syndrome, although no one has referred to it by that term.

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  2. Cindy K Daugherty
    November 17, 2017 at 5:34 pm

    From reading the posts previous to mine it sounds like there are so many variations of how people suffer with PS. After being to many specialists, the best treatment I have found is taking 300mg Gabatentin once a day (I cut down from 3 times a day because I had very little short term memory and couldnt do simple math in my head). Sleeping horizontally-laying down like normal people causes me a lot of sciatic pain If I sleep sitting up the last two hours, I can walk with little or no sciatic pain. I still have the PS burning. Any similar experiences?

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  3. July 20, 2013 at 1:42 pm

    Way cool! Some very valid points! I appreciate you
    writing this article plus the rest of the site is also very good.

  4. Teresa
    June 16, 2013 at 1:32 pm

    Matt – I’m looking at 7 years +…. with a story that is probably not much different from others described on this page. I have read through the comments and posting on this site and am intrigued. I am going to contact the 3 medical providers listed on your site.

    I do have one question, though. I had a test performed in May of 2012 which showed that I fall into the 15% to 20% of the population with the sciatic nerve splitting and part of it running through the piriformis muscle. Do you know if you had a similar situation? I am concerned that the arthroscopic approach may not provide the same relief for someone with the “split-nerve split-muscle” configuration that it would for a person who’s sciatic nerve passes completely outside the muscle.

    • June 16, 2013 at 2:30 pm

      I did not have a split anatomy. I recommend you call Dr. Heinrich and speak to his PA Adam.

      • Teresa
        June 17, 2013 at 5:42 pm

        I am in contact with Dr. Heinrich’s office as of today. I was told to expect a call from either Dr. Heinrich or his PA within the next few days. I was also told that he is providing treatment for this and performing procedures on a very regular basis. It was so nice to say “piriformis syndrome” and NOT be asked either “can you spell that for me?” or “what’s that?” when asking about treatment for the condition. I live in rural, northeast Kansas and I just do not have many local specialists to choose from. Thank you for starting and maintaining this site! My family and I are keeping our fingers crossed…

  5. November 26, 2012 at 9:38 pm

    Matt- could you describe specifically what your pain was like- did it come and go or was it constant? Where exactly did you feel pain? Could you walk without pain or did it increase when you walked? Did you experience pain into your low back/ spine or only in buttock and down leg? I ask you because I have been suffering for over a year with what I have been told is piriformis syndrome, however I don’t seem to follow the pattern typical for this and many of the professionals I have seen dont seem to think it is really piriformis syndrome even though I experience pain in the piriformis muscle. I would love to know exactly what others have experienced to see if my symptoms match up or not. Thanks for any input you can offer! Glad you have finally found relief!

    • November 27, 2012 at 8:30 pm

      My pain was chronic. I had it in my buttock and back of leg. Walking was sometimes unpleasant. I didn’t have any back pain. You should get a Provocative EMG (not a traditional EMG) in order to get concrete proof you have Piriformis Syndrome. You can research what that test is on my blog. Good Luck.

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